Monday, June 11, 2012

Sutent cycle 1 ends.

I keep getting e-mails requesting an update on
how Travis is doing,
and then I realize I should probably blog...

but never know what to say.

In my last post Travis wasn't doing so hot.
It was a very hard few days.
And he should have had one more week on Sutent
during that time.

There was a bit of confusion when we got
our first round of pills.
The dosing is 4 weeks on-2 weeks off.
We were given 3 full weeks of pills,
and they were working on financial aide
and figuring out how to get the meds to us from there.

somehow, that didn't happen.

We've been working with Huntsman and
the Cancer Center in Logan to get the pills,
and still aren't sure if they will be here by Friday-
when he should start again.

So he had 3 weeks on 
and has had the past week and a half off.

It isn't great that he wasn't able to get 4 weeks on,
but with that being said,
I'm not sure if his body could have taken another week on.

It was incredibly,
hard on Travis.
(And all of us-really.)

So I will keep you all posted when we figure out meds,
but if all goes as planned he will start again
on Friday.

From what we know,
with each new cycle,
the side effects vary.

Sometimes it's the nausea,
sometimes it's diarrhea. 
Or both.
Sometimes it's hand and foot,
or mouth sores.
And they worsen as the weeks go on.

We are hoping that with this cycle
the stomach pains and nausea and 
all of the awful side effects don't come
back in such full force.
Because-if they do, 
something will have to change.

With his 2 weeks off he is feeling ok.
Still not great,
but ok.
Still fevering and feels a little off,
but much improved from last weekend.

The hardest part of this for us,
besides the obvious-feeling terrible all of the time,
is not really ever knowing what lies ahead.

We quite literally can't plan anything even a day before.
We just never know what the next day will bring.
We can't plan early mornings.
Or late evenings.

It's tough.
 But enough complaining!
We still look around in awe each night of how blessed we are.
We have a lovely home.
Beautiful, seriously beautiful kids.
Great family.
Fabulous neighbors.
And a lot of love.
Loads of it.
So we can manage.

I do feel like I need to add one thing here.
Travis has been driving a big old truck for the
past 4 years.
Now that he isn't able to do any heavy lifting,
the truck became pretty much a waste of gas money.

We put it up for sale and it sold in 2 days!

Today we went and bought a pretty little car that is
MUCH better on gas mileage for us.
And we love it.

I worry that some people will see us driving it
and think we are awful people because of the lovely
fundraiser held in our behalf.

I know, 
that everyone gave from their heart.
I know,
that I don't have to explain our actions to anyone.
And I probably wont explain our purchases
or what we do financially here again.
But I wanted to make sure that people know
that we are Eternally grateful for all that we have been given.
I still have no words.

Someone knew we were looking for a small
car, and very kindly, and generously donated a little extra
money for that purpose.

With their kindness,
and selling the truck,
we have the cutest little car
and will save a Large amount of money on gas.

We have amazing people in our lives.
  And we have no doubt that we don't deserve 
all the love we have.

 I've said my peace.

I'm going to snuggle my husband
because we have 4 more days till hell month
begins again.


Love to all.


The Fluckiger Family said...

Snuggle...snog away! So happy and grateful to see people taking care of you! Always, always praying for you. You know I love you to the moon and back :) XOXO

Eileen said...

Dear Cute Hayley. Please don't feel the need to explain any financial spending. All of that money was given with love and happiness. It made SO many people happy to be able to help in some way. EVERY day, someone [many someones] wish there was something that could be done to help. That happened with that fundraiser!!! You guys are very, very loved. By many, many people!

Melissa Hernandez said...

You're too cute to worry about what people think about your financial situation. I don't think you should feel guilty or feel the need to explain yourself AT guys are amazing, and everyone wants the BEST for you guys in every way possible! Thinking of you, and I hope you got some serious snuggle time in!!!

Kellie said...

You shouldn't feel guilty for buying a car because you did it for a wise reason--to save money.
If you hadn't first sold your truck....then maybe we could judge. =)
You're just showing that you're being wise stewards over your money.
I'm sorry for all the wide range of emotions you have to endure. And I'm sorry (and amazed) at the pain Travis has to endure. The Lord must have some pretty amazing blessings in mind for you.