Sutent cycle 1 ends.

I keep getting e-mails requesting an update on

how Travis is doing,

and then I realize I should probably blog...

but never know what to say.

In my last post Travis wasn't doing so hot.

It was a very hard few days.

And he should have had one more week on Sutent

during that time.

There was a bit of confusion when we got

our first round of pills.

The dosing is 4 weeks on-2 weeks off.

We were given 3 full weeks of pills,

and they were working on financial aide

and figuring out how to get the meds to us from there.

Well...

somehow, that didn't happen.

We've been working with Huntsman and

the Cancer Center in Logan to get the pills,

and still aren't sure if they will be here by Friday-

when he should start again.

So he had 3 weeks on 

and has had the past week and a half off.

It isn't great that he wasn't able to get 4 weeks on,

but with that being said,

I'm not sure if his body could have taken another week on.

It was incredibly,

incredibly 

incredibly 

hard on Travis.

(And all of us-really.)

So I will keep you all posted when we figure out meds,

but if all goes as planned he will start again

on Friday.

From what we know,

with each new cycle,

the side effects vary.

Sometimes it's the nausea,

sometimes it's diarrhea. 

Or both.

Sometimes it's hand and foot,

or mouth sores.

And they worsen as the weeks go on.

We are hoping that with this cycle

the stomach pains and nausea and 

all of the awful side effects don't come

back in such full force.

Because-if they do, 

something will have to change.

With his 2 weeks off he is feeling ok.

Still not great,

but ok.

Still fevering and feels a little off,

but much improved from last weekend.

The hardest part of this for us,

besides the obvious-feeling terrible all of the time,

is not really ever knowing what lies ahead.

We quite literally can't plan anything even a day before.

We just never know what the next day will bring.

We can't plan early mornings.

Or late evenings.

It's tough.

 But enough complaining!

We still look around in awe each night of how blessed we are.

We have a lovely home.

Beautiful, seriously beautiful kids.

Great family.

Fabulous neighbors.

And a lot of love.

Loads of it.

So we can manage.

I do feel like I need to add one thing here.

Travis has been driving a big old truck for the

past 4 years.

Now that he isn't able to do any heavy lifting,

the truck became pretty much a waste of gas money.

We put it up for sale and it sold in 2 days!

Yay!

Today we went and bought a pretty little car that is

MUCH better on gas mileage for us.

And we love it.

BUT,

I worry that some people will see us driving it

and think we are awful people because of the lovely

fundraiser held in our behalf.

I know, 

that everyone gave from their heart.

I know,

that I don't have to explain our actions to anyone.

And I probably wont explain our purchases

or what we do financially here again.

But I wanted to make sure that people know

that we are Eternally grateful for all that we have been given.

I still have no words.

Someone knew we were looking for a small

car, and very kindly, and generously donated a little extra

money for that purpose.

With their kindness,

and selling the truck,

we have the cutest little car

and will save a Large amount of money on gas.

Awesome.

We have amazing people in our lives.

  And we have no doubt that we don't deserve 

all the love we have.

 I've said my peace.

Now,

I'm going to snuggle my husband

because we have 4 more days till hell month

begins again.

Jealous?

Love to all.