Tuesday, April 13, 2010

Waiting for a plan.

This morning Travis and I met with the Radiation Dr. We were there for quite a while, but I'll give you the gist of what we learned today.

First, she really isn't %100 sure on how to treat his rib. Renal Cells don't react super well to radiation, and she just wants to get a second opinion from a Dr. in SLC who really understands how to localize his radiation to get optimum results.

We are completely OK with as many doctors as possible checking his case out so he gets what he needs. Unfortunately there is no way to get rid of the spots on his ribs. This will once again, just slow down (or hopefully stop) progression.

I'm a little disappointed about that. I had my hopes up that they could zap it and it would disappear!

Second, she really wants Travis to get another Brain scan to make sure nothing has spread there. She just wants to make sure she has all the information she can get to send to the other Dr.

The MRI is tomorrow, so once again, we are asking for your prayers, and fingers to be crossed. (Do you feel like we just ask and ask?)

Eventually he will need an MRI done on his spine, but the contrast used during an MRI is really hard on Kidneys. Since Travis only has 1 (and 1 with a tumor at that), she'd like to space them out a ways.

She said we are in no hurry to get this done, so we can take our time and make sure we have the right plan in place.

So, we will keep you posted. In the mean time, I will be spending my days tomorrow a little antsy and worried. And drinking a whole lot of Dt coke!

Thursday, April 8, 2010

Waiting again.

We weren't able to meet with the Radiation Doctor today, but have scheduled an appointment for Tuesday. I know that some of you are wondering what's going on, so I thought I'd let you know that once again, we are waiting.

What's new? Doesn't it seem like we are always waiting? ; )

Tuesday, April 6, 2010

More.

When Travis finally spoke with the Dr. today, he was a little concerned about the growth on his ribs. We were hoping it wasn't big enough for him to be worried, but that's not the case.

The Dr. wants him to meet with a radiation Dr. (probably on Thursday) to come up with a plan and see if the radiation will help.

We are nervous about another treatment being done. It seems Travis is finally getting used to the crap he gets from his immunotherepy drugs, and now he may have to start something else.

We are however, excited about the chance that the radiation may shrink, or remove the cancer from that spot. The rib causes him the most pain, and it would be quite nice to have it gone!

Wish us luck in the next few weeks!

And as usual, thanks for caring.

Monday, April 5, 2010

Results and an Easter Message.

Results first:

We have yet to hear from the Doctor, but being the impatient people we are, Trav went and picked them up and we read them for ourselves. (It would have been a Looong night if he hadn't!) It looks like there is no change in his lungs. The spot on his rib is slightly larger (again, stop growing!!), and the tumor in his kidney is slightly larger. The report said that there is nothing unusual on his liver, which is giving us a little hope because there used to be a lesion there, but until we talk to the Dr. we aren't getting too excited about it. That could easily have been an error. But fingers crossed....
We are both thinking that the Dr. wont be super concerned about the growth because it seems very small, but we will see tomorrow for sure. We are feeling much better, and might even sleep tonight! Imagine that.

And Easter Message:

Travis has to write the message for our ward bulletin every few months. I just loved what he wrote this month, and wanted to share it. Have I ever mentioned how awesome my man is? Now you can see for yourselves.

I love this time of year. As spring pushes away winter, life begins again. I love clearing away the last of the dead flowers to reveal new green buds sprouting out of the ground. Feeling the sun after what seemed like an eternity of absence. I can't wait for the smell of fresh cut grass and spring rain. It is a great time of year. It seems like the perfect time to celebrate life and the resurrection of our Savior.

When I think of Easter my mind tends to wander to the picture of the Savior kneeling against a tree in Gethsemane. There he is feeling the weight of the world on his shoulders. All of mankind's flaws pushing down on someone who had never had to endure this kind of anguish, because of his perfect existence. He was there with purpose, wishing for the pain to end, but understanding that his mission had to be fulfilled to save us all. My mind then moves to the scene of the cross, where after a full night of suffering he had to be humiliated in front of peers and strangers and die with robbers. A man who had loved, healed and even brought back the dead was forced to hang with common thieves.

Then the Savior of the world rises again. He overcomes death for all of us. All mankind is given the gift of life forever. One day we can all overcome death because of him. As I tell my wife often, I get to dump this "rental" body and get a perfect replica. What an amazing gift! President Gordon B. Hinckley once said, "No event of history has been more certainly confirmed. There is the testimony of all who saw and felt and spoke with the risen Lord. He appeared on two continents in two hemispheres and taught the people before His final ascension. Two sacred volumes, two testaments speak of this most glorious of all events in all of human history. But these are only accounts, the faithless critic says. To which we reply that beyond these is the witness and the testimony, borne by the power of the Holy Ghost, of the truth and validity of this most remarkable event. Through the centuries untold numbers have paid with the sacrifice of their comforts, their fortunes, their very lives for the convictions they carried in their hearts of the reality of the risen, living Lord."

I know that Jesus Christ suffered for each of us. He felt each of our burdens so he could lift us out of our own personal winters and help us find our spring. He will always be there for us if we let him. That is why we can lean on him; trust him to guide us. In the name of Jesus Christ. Amen.

I hope you all had a wonderful Easter weekend as well. We sure appreciate you all!

Wednesday, March 31, 2010

It's that time again.

Hey everyone,

Just wanted to give you all a head's up that it's scan time again. Travis will be going in on Monday and we are praying for decent news. I'm hoping selfishly that you will send a prayer or two our way.

And I know you will, because you are good people.

Enjoy your Easter weekend! I hope it is spent with families, food, and fun.

Monday, March 22, 2010

{Answers}

Thursday Travis goes in for his 88th treatment.
88.
It's a big number.
88 awful Thursdays.

We just hate Thursdays around here. If I could tell them where to go, I would.

Being Kidney Cancer Awareness Month, I've had it on my mind even more then usual. I've been checking the KCA page on Facebook daily, and am in complete awe of how many people this disease has affected, and how many lives it has changed.

It has most certainly changed ours.

Bear with me while I answer a few ?'s.

These ones are from my mom. I love my mom and am grateful for her feeding us whatever Trav is craving on Thursdays. She's good people.

Why does Travis act so healthy and happy, when I know he never feels good?

I'm not really sure how to answer that question. Travis most definitely doesn't tell people when he's not feeling well, and half the time he doesn't even tell me. I think Trav doesn't like the fuss of people worrying about him. And I think that if you let the cancer seep into every part of your life, it wins. So he pretends he feels good all the time, and life feels a little more normal because of it.

How do you both stay so strong and have so much faith and strength? How do you manage to do so much service for others when you are going through so much yourselves? What can we as a family do to support you more?

Mom, how do you expect me to answer these??

1) We aren't really that strong, and at moments you could call us flat out wusses. And I think we don't have near enough faith and strength.
2)We don't do near enough service, and feel like we could spend a lifetime trying to payback those who have shown us what service really is. We are very well taken care of and have some pretty amazing people on our side!
3)You could buy me lots of clothes. That would really help me out. :)
Really though, we have everything we need, and are thankful for all our family does for us!

Why hasn't Travis lost his hair?

Travis is currently on a chemo/immunotherepy drug called Torisel. It is injected just like a normal chemo through a port, but luckily the side affects don't include him losing his hair. We are pretty grateful for that.

How does Travis still work?

Trav's gets his treatments on Thursdays, and that is usually the hardest day but by Friday he isn't near as tired, but has some chest pains and headaches. He is lucky enough to have a job where he can work in his own area and enjoy the quiet. They treat him pretty good there and can tell when he isn't feeling his best and just leave him alone. I'm always pretty amazed at what a hard worker he is, and am so thankful that that is yet another thing he does for our family.

How exactly does a treatment go?

We just love the cancer center in Logan where Trav gets his treatments. Because he has been going there for so long, he knows the Doc. and the nurses pretty well. They know that he has left work to be there, and they do their best to get him in and out as quickly as possible.

He has a port in his chest that they hook the IV up to. He first gets a bag of benedryl. (This combined with the medicine makes him exhausted)! Once that is all dripped out, he gets his Drug injected. Usually he's there for about 2 hours. The Chemo room is a pretty big room there with 10-12 beds in it, and people hooked up to each one. (And most the time they are much older then him). Sometimes he listens to them and chats with them, but most of the time the benedryl kicks in and he just sleeps through it all.

Thursdays are most definitely the hardest day of the week. He comes home exhausted from the drug treatment and the benedryl. Usually his mouth is really swollen, and he gets pretty bad headaches, chest aches, with the occasional stomach pains.

I'd say for Travis the side effects are awful, but so is going to the cancer center weekly. He hates seeing so many sick people in one room, and some of them just look worse every week. As much as he loves the staff there, it's still a really depressing this to see week after week.

And for me it's hard to send him there knowing that for most people they have an allotted amount of treatments and then they are done, but for Trav, they are endless. He just gets to go for as long as they are working. (Which I pray is a long time!)

What do you need most right now?

Again, we really have all we need, but thanks again to the so many of you who are always doing such wonderful things for us. We are so blessed.

What is the hardest part?

That is a very loaded question, and I can think of like 30 answers right off the bat. In all honesty, it's all hard. (And forgive me if the whining really starts here).

Facing stage 4 cancer, with pretty awful statistics, makes your future pretty unsure. When we were first married we'd make plans for things we'd want to do "in 10 years" or "someday", and it's really, very hard to not be able to do that anymore. We feel a sense of urgency, like we need to fit our whole lifetime in right away. And it's just not possible to do that, but it's also really hard to stop trying.

(Am I making sense here?)

We've had to really think of things that I don't think any couple should have to do for many years to come. Talk about things that we just shouldn't have to talk about yet. And it just plain sucks.

So I guess the answer is really just the unknown of it all is the hardest part. But I'd also say that this answer changes daily. It's always different.

Do your daughters understand?

For us, it's been pretty hard to find the line of what they should know, and shouldn't know. They know Daddy has cancer, but they have no idea how scary it is. Just yesterday Adyson looked at Trav's orange bracelet and said "Dad, do you know what's worse then cancer? Waking up sooo early for school is way harder then cancer." We had a good laugh over that! They know that Thursdays they need to behave, and know that Dad's a little more tired then normal that night, but they still climb all over him and treat him like same ol' dad. And that's such a good thing! They don't treat Trav like hes sick, and remind us daily how important it is to just. live. And it's hard to feel too crappy with them around.

I think if things change with scans, and as time passes by, they will know what they need to know, but for now Dad is just Dad. We like it that way.

We as always, are so thankful for the continued blessings we receive daily. We have friends and family who are always here for us, and know that many of you are praying for us. We thank you from the bottom of our hearts for fighting our battle right along side us. Sure love you all!

Monday, March 8, 2010

Did you know...

March is Kidney Cancer Awareness month?
Well, now you do. Awesome.
We even bought some fancy orange wristbands with a "Travstrong" logo to prove it.
Also awesome.
I've been thinking of how I can make people more aware of this yucky stuff that seems to rule our lives. Knowledge is power, right?
I thought about giving you simple facts about kidney cancer, but every time I try to write this post it just sounds boring. (Is it wrong to admit that?)
Instead, I've decided you get to ask the questions. I think this is a great way to get people to be more educated about this cancer.
So, either e-mail me at hayley429@hotmail.com, or ask in the comments section and make your name anonomys, and I will answer anything. I'll even research the answer if I don't know it. (That's love people.)
Your question can be anything cancer related from why in the world Trav looks so healthy to what treatment days are like, Just don't ask anything too wierd...
We are officially open books.
(I'm a little scared that this is gonna backfire and you all will be too scared to ask. Don't leave me hanging friends.)
To read more about Kidney cancer go here. www.kidneycancer.org